Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Multiple Sclerosis Society (MS Society UK)
Multiple sclerosis (MS) is a neurological condition - that means it affects your nerves. You get it when your immune system isn’t working properly. Your immune system normally protects you by fighting off infection, but in MS it attacks your nerves by mistake. Your nerves control lots of different parts of your body. That’s why you can get MS symptoms in many parts of your body. It’s also why everyone’s MS is different. Once diagnosed, MS stays with you for life, but treatments and specialists can help you to manage the condition and its symptoms. We're here to help you live well with your MS and fund research to stop MS for good.
Glut1 Deficiency UK
Glut1 Deficiency UK is a non-profit family led charity dedicated to improving the lives of those in the Glut1 Deficiency community through its mission of: Increasing awareness of Glut1 Deficiency Improved education of families and health professional in relation to Glut1 Deficiency Advocacy for families and patients impacted by Glut1 Deficiency Support and funding for Glut1 Deficiency research
Brain Tumour Research Campaign
Brain Tumour Research Campaign (BTRC) is a UK-based charity dedicated to funding and accelerating brain tumour research. Our mission is to improve outcomes for people affected by brain tumours by supporting high-quality research, raising awareness, and enabling collaboration among researchers, clinicians, patients, and supporters. We fund research grants and collaborations, publish research outputs, run campaigns and educational resources, and involve donors through fundraising and sponsorship to ensure that donations support research projects. The organization operates a Research program with collaborations and a publications portfolio that highlights papers, abstracts, posters, and presentations facilitated by its grants.
Myrovlytis Trust
The Myrovlytis Trust is a charity founded in 2007 to transform the outlook for rare conditions. With an initial focus on Birt-Hogg-Dubé Syndrome and osteosarcoma, the trust strategically funds research directed towards new treatments. We want to ensure that patients gain access to the same state-of-the-art technologies, breakthroughs and therapies as those with more common disease. Driving research, providing support and improving outcomes for patients and their families affected by rare conditions
Metabolic Support UK
Metabolic Support UK are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible. Moving forward, utilising our 10 year strategy we will continue to improve the lives of people living with Inherited Metabolic Disorders, and to work collaboratively with our key partners and supporters to ensure that we achieve this. Our strategy focuses on four main pillars: Indvidual Support Building Communities Empowerment Advocacy
The Glaucoma Foundation
The Glaucoma Foundation is a non-profit organization dedicated to supporting research, education, and advocacy related to glaucoma. It aims to improve the lives of those affected by glaucoma through funding innovative research, providing patient education resources, and promoting awareness campaigns. The foundation collaborates with medical professionals, researchers, and patient communities to advance understanding and treatment of glaucoma. It also organizes events, webinars, and support programs to empower patients and healthcare providers. The foundation's mission includes fostering scientific discovery, improving diagnostic and therapeutic options, and ensuring access to quality eye care for all individuals at risk of or living with glaucoma.