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Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.

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Why PatientGroups.ai?

Verified Communities

We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.

Global Reach

Access support groups from around the world, or find local communities near you that speak your language.

Patient-Centric

Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.

How It Works

Finding the right support group is simple. We've made it easy for you.

1

Search Your Condition

Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.

2

Explore Communities

Review detailed profiles of advocacy groups, including their mission, resources, and contact info.

3

Connect & Get Support

Reach out directly to join communities, access resources, or get involved with groups that feel right for you.

Featured Communities

Browse our curated list of patient advocacy groups and support networks making a difference today.

Rare Disease UK

Rare Disease UK

We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories: reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

Independent Cancer Patients' Voice

Independent Cancer Patients' Voice

Independent Cancer Patients' Voice (ICPV) is a charity registered by the Charity Commission for England and Wales. It focuses on patient advocacy, support, and engagement in cancer research. The organization aims to involve patients in research design, policy, and clinical trials, providing a platform for patient voices to influence cancer research and treatment. ICPV organizes courses, conferences, and advocacy activities to empower patients and improve cancer care through active participation and collaboration with researchers and clinicians.

Live Through This

Live Through This

The website indicates that the organisation 'Live Through This' has rebranded and become OUTpatients. Visitors to livethroughthis.co.uk are being redirected to the new OUTpatients site.

UKATPA

UKATPA

The UK ATTR Amyloidosis Patients’ Association (UKATPA) is a charity that was founded in 2017 by a group of UK patients with transthyretin (TTR) systemic amyloidosis (ATTR). We are supported by the consultant physicians of the UK NHS National Amyloidosis Centre (NAC).

Fragile Society

Fragile Society

The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. At that time there were no facilities to support and inform families about any aspect of Fragile X. The charity has since grown to consist of a team of dedicated employees and volunteers, supporting thousands of individuals and families.

Stiff Person Syndrome Support and Charity

Stiff Person Syndrome Support and Charity

<p>This site is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may also be of interest to caregivers, care professionals, researchers (together with advocates for the condition) and the general public.</p><p>------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------</p> Stiff Person Syndrome Support Group and Charity, founded in 1998 by Liz Blows, is a UK-based not-for-profit organization dedicated to supporting individuals with Stiff Person Syndrome (SPS). The organization provides information, advocacy, support services, and promotes research into SPS. It aims to raise awareness of SPS, offer patient support, and facilitate research collaborations. The charity operates in the UK and Ireland, with a physical address at 75 Normandy Avenue, Beverley, East Yorkshire, HU17 8PF. It has a charity registration number 1099206. The organization engages in various activities including hosting conferences, supporting patient stories, and maintaining an online presence through social media platforms such as Facebook, Twitter, Instagram, and LinkedIn. The organization also provides educational resources, supports research publications, and collaborates with medical and research institutions. Key personnel include Liz Blows (Chair). The charity is actively involved in policy advocacy, research funding, and community engagement to improve the lives of SPS patients.

The Power of Community

Navigating a health condition is easier when you have the right support. Here's what you can find.

Shared Experiences

Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.

Practical Information

Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.

Emotional Support

Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.

Advocacy & Awareness

Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.

Start Your Journey

Take the first step toward connection and support. Search for patient groups that match your needs today.

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