Find Your Patient Support Community

Instituto Oncoguia

O Instituto Oncoguia disponibiliza informações e orientações para pessoas com câncer, incluindo esclarecimentos sobre como e por que participar de pesquisa clínica e protocolos de pesquisa em câncer que estão recrutando pacientes.

World Pancreatic Cancer Coalition

Childhood Eye Cancer Trust

CHECT Publications page describing the organization’s publishing activity, including InFocus newsletter, the Impact Report, and the Annual Report & Accounts, and directing visitors to latest news and contact information. The page confirms CHECT as the source of these publications and provides a contact address (The Royal London Hospital, Whitechapel Rd, London) and general contact details (info@chect.org.uk, 0207 377 5578). The site is the CHECT main site (chect.org.uk).

Pancreatic Cancer UK

Pancreatic Cancer UK is a charity dedicated to providing information, support, and advocacy for individuals affected by pancreatic cancer. They offer a range of publications, educational resources, and support services to help patients, families, and healthcare professionals. The organization actively engages in advocacy activities to influence policy and improve patient care. They collaborate with healthcare providers, researchers, and industry partners to advance research and clinical trials. Their mission is to improve outcomes and quality of life for people affected by pancreatic cancer through education, support, and advocacy. Pancreatic Cancer UK is a charity dedicated to supporting people affected by pancreatic cancer, funding research, and campaigning for change. They provide information, support services, and advocate for early detection and better treatment options. The organization also funds research projects into early detection and treatments, collaborates with research institutions, and engages in policy advocacy. They operate a support line, publish educational resources, and run campaigns to raise awareness. Their activities include supporting patients and families, funding research, influencing policy, and collaborating with healthcare professionals and researchers. They have a strong focus on improving outcomes for pancreatic cancer patients through research, advocacy, and support.

Dravet Foundation

We are committed to carrying out our activity in a TRANSPARENT manner, promoting HONESTY and INTEGRITY in all our actions. We look to the future through INNOVATION, through the development of new avenues of research.

MDS UK Patient Support Group

MDS UK Patient Support Group provides support, information, and advocacy for individuals in the UK diagnosed with Myelodysplastic Syndromes (MDS) or Chronic Myelomonocytic Leukaemia (CMML), and their caregivers. They offer online support meetings, educational resources, real patient stories, and facilitate access to specialist centers. The organization also engages in fundraising activities to raise awareness, advocate for improved treatments, and drive research into MDS and CMML. MDS UK Patient Support Group provides comprehensive information, support, and resources for patients, families, and caregivers affected by Myelodysplastic Syndromes (MDS). They offer educational materials, patient booklets, factsheets, support meetings, and guidance on living with MDS. The organization also engages in advocacy, supports clinical trials, and provides resources for traveling and managing the disease. Their activities include raising awareness, patient education, and supporting research collaborations. They are a registered charity in the UK, with contact details including a phone number and email, and maintain a website with extensive patient resources.