Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Lasag
London Asbestos Support Awareness Group (LASAG) is a UK charity focused on asbestos-related information and support. The site provides information on asbestos diseases (via 'Asbestos Diseases'), benefits and compensation (including legal compensation under 'Legal Compensation'), referral services, 'Support Groups and Events', news and campaigns, fundraising, and 'Meet the team' information. Primary contact is support@lasag.org.uk; main website is https://www.lasag.org.uk. The charity is registered in England and Wales with charity number 1174543. The registered address is Farthings, Bridle Lane, Loudwater, Rickmansworth, Hertfordshire, WD3 4JQ. Phone line is 0808 278 2515.
Bowel Cancer UK
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. Our vision is a future where nobody dies of the disease.
Bardet-Biedl Syndrome UK
Bardet-Biedl Syndrome UK (BBS UK) is a registered charity established in 1993, supporting individuals with Bardet-Biedl Syndrome, their families, and carers in the UK. It is a user-led organization represented by adults with BBS and parents of children with BBS. The organization's aims include preserving and protecting health, promoting welfare, and advancing education about BBS. BBS UK supports over 700 people diagnosed with BBS, along with their families and professionals involved in care and support. The organization offers various programs including advice services, clinics, conferences, support groups, and educational resources. It also engages in advocacy, research, and policy activities to improve health outcomes and understanding of BBS. Bardet-Biedl Syndrome UK (BBS UK) is a registered charity established in 1993, supporting individuals with Bardet-Biedl Syndrome, their families, and carers in the UK. It is a user-led organization represented by adults with BBS and parents of children with BBS. The organization's aims include preserving and protecting health, promoting welfare, advancing education about BBS, supporting over 700 people diagnosed with BBS, and fostering understanding, confidence, independence, self-advocacy, and social connections. BBS UK offers various programs such as advice services, clinics, conferences, support groups, educational booklets, newsletters, and fundraising activities. The organization also engages in advocacy, research, and policy work, maintains a website with extensive resources, and has a team of officers, trustees, and staff dedicated to its mission.
EGFR Positive UK
EGFR Positive UK is a charity dedicated to empowering patients diagnosed with EGFR mutation positive Non-Small Cell Lung Cancer (NSCLC), primarily at Stage 4. The organization aims to inform and involve patients in their treatment decisions, drawing on the European Cancer Organisation’s Code of Cancer Practice. It provides resources, support, and advocacy for individuals affected by EGFR+ lung cancer, including educational materials, patient support services, and information about treatment options. EGFR Positive UK also engages in research dissemination, policy advocacy, and community support activities. The organization is a member of Lung Cancer Europe and collaborates with various UK and international lung cancer organizations. It offers conferences, campaigns, and a good practice guide to improve patient care and outcomes.
Parkinson's Europe
Parkinson's Europe is the only European Parkinson's umbrella organisation. We have been championing and working with the global Parkinson’s community for nearly 30 years. As the leading voice for Parkinson’s in Europe, we provide trusted information; advance and share good practices; raise awareness and improve understanding of the condition; and facilitate research collaboration. Our vision is that people with Parkinson's and their families have access to the highest standards of treatment, support and care they need to live a full and comfortable life.
Muscle Help
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The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search