Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Rareminds
Rareminds is a registered charity in England and Wales, no. 1205120. Its mission is to provide affordable, timely access to highly specialised counselling for the rare disease community, and campaign for recognition of the importance of specialist mental health support by informing policy, practice, and promoting standards of excellence. It is partially funded by donations and sponsorship via unrestricted grants. Rareminds operates independently of companies and does not endorse any products. It does not have editorial or clinical control over content, activities, or service provision. The organization supports emotional wellbeing, counselling, training, consultancy, and awareness activities for the rare disease community.
Action Bladder Cancer UK
Action Bladder Cancer UK (ABC UK) is a charity organization dedicated to raising awareness of bladder cancer, improving early diagnosis, and supporting research and patient support activities. They provide patient stories, educational resources, and support groups. The organization is involved in advocacy, research funding, and clinical trials. They operate primarily in the UK, with a physical address at 6 Trull Farm Buildings, Tetbury, Gloucestershire, GL8 8SQ. The charity was established to address the late detection of bladder cancer and aims to improve survival rates. They have a registered charity number 1164374. The organization engages in policy advocacy, supports patient education, and collaborates with healthcare professionals and researchers. Action Bladder Cancer UK (ABC UK) is a charity organization dedicated to supporting patients with bladder cancer, raising awareness, funding research, and providing educational resources. They operate primarily within the UK, with activities including patient support groups, research grants, educational programs, and advocacy campaigns. The organization is involved in clinical trial support, research collaborations, and policy engagement. They maintain a website with resources for patients and professionals, and have active social media presence on Twitter and Facebook. The charity was established in 2015 and is registered under charity number 1164374. They offer various support services, educational materials, and participate in policy discussions related to bladder cancer.
Timothy Syndrome Alliance
Our mission is to improve the diagnosis, treatment and care of children with Timothy Syndrome, and to support the families of those diagnosed. Timothy Syndrome Alliance (TSA) is a charity dedicated to improving the diagnosis, treatment, and care of children with Timothy Syndrome and supporting their families. It aims to raise awareness, enhance scientific understanding, and reduce family isolation through community support, advocacy, and research initiatives. TSA is run entirely by parents and volunteers, and is NGO Source certified as a 501(c)(3) organization. It operates globally with members across many countries, including the US, UK, and others. The organization offers programs such as family events, support groups, and educational resources, and engages in research and policy advocacy related to CACNA1C-related disorders.
Usher Syndrome Ireland
Usher Syndrome Ireland is a charity founded by people with Usher syndrome, for people with Usher syndrome. It aims to support, inform, empower, and build a community for those affected by Usher syndrome. The organization raises awareness, funds research, advocates for affected individuals, and creates a supportive community. It provides information, support, and advocacy for people with Usher syndrome and their families. Usher Syndrome Ireland is a patient organization dedicated to providing information, support, and resources for individuals and families affected by Usher syndrome. They offer educational materials, support services, and advocacy to improve quality of life and access to care. The organization collaborates with various health and social services to promote awareness and research. They maintain a website with extensive resources, including research news, patient registries, and community support programs. Their mission is to empower those affected by Usher syndrome through education, support, and advocacy, fostering a strong community and advancing research efforts.
Cure For Claire West Midlands C.I.C.
We are a Community Interest Company that does exactly as it states, We benefit the community. Everything you see on this site has had hard work put into every part, we pay for the site and the upkeep ourselves, we produce all the information ourselves, we create all multimedia ourselves, we pay for continuous training ourselves.
Lymphoma Action
Lymphoma Action is a registered charity in England and Wales (1068395) and in Scotland (SC045850). It provides information, support, and advocacy for people affected by lymphoma. The organization offers a range of patient support services, educational resources, and campaigns to raise awareness and improve patient outcomes. It collaborates with healthcare professionals and policymakers to influence policy and advance research in lymphoma. The organization maintains a website with extensive resources, including self-management tools, wellbeing videos, and clinical trial information. It operates in the UK and has a global reach through online resources and social media platforms.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search