Find Your Patient Support Community
Discover support groups and communities where people share experiences, answer questions, and help each other navigate life with your condition.
Why PatientGroups.ai?
Verified Communities
We vet every organization to ensure you find safe, legitimate support networks and advocacy groups.
Global Reach
Access support groups from around the world, or find local communities near you that speak your language.
Patient-Centric
Built with patients in mind, prioritizing your privacy, ease of use, and meaningful connections.
How It Works
Finding the right support group is simple. We've made it easy for you.
Search Your Condition
Enter your health condition or diagnosis. Our smart search instantly finds relevant support organizations.
Explore Communities
Review detailed profiles of advocacy groups, including their mission, resources, and contact info.
Connect & Get Support
Reach out directly to join communities, access resources, or get involved with groups that feel right for you.
Featured Communities
Browse our curated list of patient advocacy groups and support networks making a difference today.
Team Lopez Foundation
The Team Lopez Foundation was incorporated in memory of Alex Lopez who was tragically lost to pancreatic Cancer. Our mission to honour Alex’s legacy is to raise funds for Pancreatic Cancer Research. We have established with Sydney University the Alex Lopez PhD Scholarship in Pancreatic Cancer. The scholarship named in loving memory of Alex, plays a pivotal role in attracting talented PhD students from around the world to improve the survival rates of pancreatic cancer patients. Over the last 15 years, University of Sydney clinicians based in their teaching hospital on the Royal North Shore campus, have become leaders in treating pancreatic cancer. Patients treated by their team survive almost twice as long after diagnosis compared to the average Australian pancreatic cancer patient treated elsewhere. At the University of Sydney, as part of the Kolling Institute at the Royal North Shore Hospital, provides the research foundations that the team refine into best practice.
Rareminds
Rareminds is a registered charity in England and Wales, no. 1205120. Its mission is to provide affordable, timely access to highly specialised counselling for the rare disease community, and campaign for recognition of the importance of specialist mental health support by informing policy, practice, and promoting standards of excellence. It is partially funded by donations and sponsorship via unrestricted grants. Rareminds operates independently of companies and does not endorse any products. It does not have editorial or clinical control over content, activities, or service provision. The organization supports emotional wellbeing, counselling, training, consultancy, and awareness activities for the rare disease community.
Grace Kelly Childhood Cancer Trust
The Grace Kelly Childhood Cancer Trust was founded in 2016 in memory of four-year-old Grace. We fund research into rare and aggressive childhood cancers, educate families and clinicians about the signs and symptoms of childhood cancer and produce information booklets to explain to parents and children about the treatments they are facing. Locally, we provide financial, practical, and emotional support to families through our support service. Giving families a listening ear at the time when they need it most. Because no family should fight childhood cancer alone.
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a non-profit alliance of patient organizations in Europe dedicated to empowering, supporting, and advocating for people living with rare diseases. It coordinates network activities, policy initiatives, information and support for patients and families, and collaborates with partners to advance rare disease research and policy.
OnkoMajak
Our mission is to raise the awareness of the general and specialist public about oncological diseases, their prevention, early diagnosis and treatment options. The goal is an informed and proactive public. We strive to reduce the incidence and mortality of oncological diseases not only through interactive educational experiences within the Gut Tour and Healthy Lungs roadshows. The domain of the roadshow is an inflatable model of the colon and lungs, which helps to understand the risks and causes of various diseases.
Lung Cancer Research Foundation
The mission of the Lung Cancer Research Foundation (LCRF) is to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment and cure of lung cancer.
The Power of Community
Navigating a health condition is easier when you have the right support. Here's what you can find.
Shared Experiences
Connect with people who truly understand what you're going through. Share your story in a safe, supportive environment.
Practical Information
Get real-world advice about managing your condition, navigating healthcare, and finding resources that actually help.
Emotional Support
Find comfort in a community that cares. Whether you need to vent, celebrate, or just feel heard, we're here.
Advocacy & Awareness
Many groups work to raise awareness, fund research, and improve care. Your voice can make a difference.
PatientGroups.co Podcast
Conversations with leaders, founders, and advocates driving change in the patient advocacy ecosystem.
Patient Group Spotlight: Burning Nights CRPS Support with Victoria Abbott-Fleming
Featuring Burning Nights CRPS Support
Victoria Abbott-Fleming shares her CRPS journey, the mission behind Burning Nights, and why patient voices must shape treatment and policy.
Patient Group Spotlight: The MVA Society & The Ultra-Rare Journey
Featuring MVA Society
A deep dive into the challenges and triumphs of Mosaic Variegated Aneuploidy advocacy with founder Jonathan Bracey.
Start Your Journey
Take the first step toward connection and support. Search for patient groups that match your needs today.
Start Your Search