National Organization for Rare Disorders (NORD) logo

National Organization for Rare Disorders (NORD)

NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community.
About Us

Our Mission

NORD is dedicated to individuals with rare diseases and the organizations that serve them. Our mission is to provide support, education, research, and advocacy so that people with rare diseases can live healthier, longer, and more productive lives.

Our Values

Collaboration, Teamwork, Putting patients first, Inclusive environment

Contact Information
Conditions We Support

Other Rare Disease

    If you've been diagnosed with any of these conditions, we're here to help.

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    Link to this page on PatientGroups.ai